Celiac Disease Note (New Diagnosis)
A comprehensive template for documenting new celiac disease diagnoses, covering diagnostic basis with explicit gluten exposure documentation, gluten-free diet initiation, baseline deficiency assessment, family screening…
Document Type
clinical note / Initial Evaluation Note
Specialties
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Date: [Date]
Encounter Type: [new consult / post-endoscopy results visit / follow-up]
Service/Location: [Service or clinic location]
Source of History: [patient / parent-guardian / chart review / other]
Interpreter: [Interpreter name/ID and language / not used]
Chief Complaint
[Reason for visit] (Single line. If this is a results visit, note that.)
History of Present Illness
[Introductory summary identifying patient, reason for visit, and what established or is establishing the diagnosis] (If diagnosis is being made without biopsy, explicitly document the criteria used and that this was discussed with the patient/family.)
- Presentation and symptoms: [Key GI symptoms and extraintestinal features with duration and trajectory] (Include only clinically relevant findings affecting management.)
- Gluten exposure at testing: [Was patient consuming gluten at time of serology and biopsy? Yes/No/Unknown; approximate level if known; date and details if reduced/avoided gluten prior to testing] (If unknown, state "gluten intake at time of testing: unknown" and document plan to clarify.)
- Dietary baseline: [Current diet status: gluten-containing / gluten-restricted / strict GFD; since when; prior dietitian counseling; barriers to adherence]
- Relevant comorbidities: [Autoimmune conditions, bone health history, known nutritional deficiencies, liver enzyme abnormalities, pregnancy status or fertility goals if relevant]
Past Medical and Surgical History
- Past Medical History: [Pertinent diagnoses]
- Past Surgical History: [Pertinent procedures]
- Medications/Supplements/OTC: [List with doses; note products that may contain gluten]
- Allergies: [Allergen and reaction type] (If unknown, state "Allergies unknown" and note plan to confirm.)
Family History
[Family members with celiac disease and relationship] (If none, state "No known family history of celiac disease.")
Social History
- Household/kitchen: [Food preparation practices and cross-contact risk]
- Work/school eating environment: [Meal planning constraints]
- Access: [Access to gluten-free foods and dietitian services]
- Substances: [Alcohol and tobacco use] (Include only if clinically relevant.)
Review of Systems
(Targeted to systems reviewed; include relevant positives and pertinent negatives.)
- GI: [Pertinent symptoms]
- Constitutional: [Weight change, fatigue]
- Integumentary: [Rash, pruritus]
- Neurologic: [Neuropathy, cognitive symptoms]
- Musculoskeletal: [Bone pain, fractures]
- Reproductive: [Menstrual or fertility concerns] (Include only if relevant.)
Physical Examination
- Vitals: [BP, HR, RR, Temp, SpO2]
- Anthropometrics: [Height, weight, BMI; growth percentiles for pediatric patients]
- General/Nutritional status: [Appearance, hydration, evidence of malnutrition]
- Abdomen: [Inspection, tenderness, organomegaly, distention]
- Skin: [Findings suggestive of dermatitis herpetiformis or other rashes]
- Other signs of deficiency: [Pallor, glossitis, edema, neurologic signs]
Diagnostic Data
Celiac Serologies
- tTG-IgA: [Numeric value, units, ULN, date]
- Total serum IgA: [Value, units, date]
- EMA-IgA: [Positive/negative, titer if available, date]
- DGP-IgG/IgA: [Values, date] (Include if IgA deficient or otherwise indicated.)
(Do not state "positive" without the actual value; if unavailable, cite source and document plan to obtain.)
Endoscopy and Biopsy
- EGD date: [Date / pending / not performed]
- Biopsy details: [Locations sampled and adequacy]
- Pathology summary: [Villous atrophy, crypt hyperplasia, intraepithelial lymphocytosis; Marsh classification]
- Other findings: [Alternative or associated findings]
(If pathology pending, state "pathology pending" and document plan for results communication.)
HLA Testing
HLA-DQ2/DQ8: [Results and interpretation context] (Use to support or exclude diagnosis; do not overstate positivity as diagnostic.)
Baseline Labs
- CBC: [Results, date] [normal / abnormal]
- Iron studies/ferritin: [Results, date] [normal / abnormal]
- CMP with liver enzymes: [Results, date] [normal / abnormal]
- Vitamin D: [Result, date] [normal / abnormal]
- Folate, B12: [Results, date] [normal / abnormal]
- Other vitamins/minerals: [Zinc, copper, fat-soluble vitamins if obtained]
- Ordered today: [Tests ordered now]
- Deferred: [Tests deferred and rationale]
Bone Health
- DEXA: [Prior results with date and T-scores / not done]
- Fracture history: [History of fractures and context]
Immunizations
Pneumococcal vaccination status: [up to date / due / unknown] (If unknown, document plan to verify.)
Assessment
- Celiac disease: [Confirmed celiac disease / Probable celiac disease / Celiac disease under evaluation]
[Diagnostic basis summary: serology values with ULN context, biopsy results or no-biopsy criteria, gluten intake at testing. Note complications, deficiencies, and risk factors present.] - [Additional problems as relevant]
(Do not label as confirmed unless objective criteria are documented.)
Plan
Gluten-Free Diet Initiation
- GFD start date: [Today / prior date with specific date]
- Counseling provided: [Key points discussed: hidden gluten sources, cross-contact prevention, label reading, medication/supplement gluten content]
- Oats: [Approach to oats consumption]
- Dietitian referral: [placed / existing / declined] (Target within 2–4 weeks for new diagnosis.)
- School/work accommodations: [Letters or forms needed and provided]
Nutritional Deficiencies
- Baseline labs ordered today: [List]
- Supplementation plan: [Iron, vitamin D, calcium, folate, B12, other as indicated] (Specific dosing in medication orders.)
(If no deficiencies identified, state that and note monitoring plan.)
Vaccinations
- Pneumococcal vaccine: [recommend / defer] (Document coordination plan. If recommending outside standard ACIP indications, note shared decision-making and rationale.)
Bone Health
- Calcium and vitamin D counseling: [Dietary and supplement targets discussed]
- Exercise: [Weight-bearing exercise recommendation]
- DEXA plan: [order now / schedule at specific time / not indicated] (Include rationale based on risk factors.)
Family Screening
Counseling provided: [Patient advised to inform first-degree relatives about increased celiac risk and recommendation for serology testing while on gluten-containing diet, coordinated through their PCP]
Monitoring and Follow-Up
- Short-term follow-up: [Timeframe, typically 3–6 months] (Focus on symptom response, adherence, lab correction.)
- Serology monitoring: [tTG-IgA at ~6 and 12 months, then annually]
- Criteria for earlier return: [Worsening symptoms, weight loss, persistent diarrhea, new deficiencies]
- Repeat endoscopy consideration: [Persistent symptoms despite confirmed adherence, persistently elevated serology, or diagnostic uncertainty]
If Symptoms Persist
[Plan for persistent symptoms: reassess original diagnosis, evaluate for ongoing gluten exposure, consider alternative or additional etiologies] (Include if symptoms not yet controlled.)
Patient Education
- Materials provided: [GFD resources, websites, dietitian contact information]
- Teach-back: [Patient/family demonstration of understanding]
- Psychosocial support: [Needs assessed; referrals if indicated]
Orders and Referrals
- Labs ordered: [List]
- Imaging ordered: [DEXA if applicable]
- Referrals: [Dietitian, GI follow-up, dermatology, other]
- PCP coordination: [Vaccinations, comorbidity management, record retrieval]
(If no new orders, state "No new orders today." If required diagnostic information is unavailable, explicitly state what is unknown and document the plan to obtain it.)
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